There are days I forget that Tommy needs a contact and wears a patch. How great is that? 10 months ago, I couldn't even imaging that THE EYE wouldn't be the sole center of every thought, every obsession, invading our lives. I am happy to say that it doesn't. But, there are days... oh are there days.
There are days where we've gone through 5 patches by 7:30am. Where the skin around his eye is so raw and red, I feel guilty about his lot in life.
There are days where I've put socks on both of his hands (after we've gone through 5 patches by 7:30am!) and he rubs his face on anything he can, attempting to get the patch off. Oh how my heart breaks.
There are days where he just cries when he sees me coming with the patch. Guilt and heartbreak.
There are also days where strangers remind me... sometimes it's just an innocent "what is wrong with his eye?", sometimes just a stare, occasionally a stupid comment, and sometimes they quickly look away. That usually brings anger.
And there are days where we've lost yet another contact. That makes me feel stress and despair. How did I let another one get lost? Where could it be? Obsessively I look- sometimes even days later. Meanwhile, Tommy is blissfully patch free and contact free. I can only imagine his joy! No uncomfortable contact.... no itchy patch. Sometimes I'm even able to watch him enjoy it without frantically searching for that $250 contact lens... without wondering if the patch-free day is hurting his vision. It is all so unfair.
But the best days are when we all forget.... (and yes, he is contact free and patch free after we lost a contact on vacation!)
