Friday, April 15, 2011

Post-Op: More bad news

After about an hour and a half we were ushered into a consult room.  Admittedly this made me a little nervous.   They didn't make anyone else go into a room... what could it be?  Luckily, we didn't have very long to dwell on the "what ifs" because our ophthalmologist came in fairly quickly.  He sat us down and told us that the cataract surgery went well and the cataract was removed.  Unfortunately, he also told us that Tommy has PHPV (Persistent Hyperplastic Primary Vitreous).  He explained that this was a lack of development in the back of the eye and he didn't know how much of the back of the eye was involved yet.  He said that there was a wide range of severity with this condition, but couldn't tell Tommy's prognosis yet.  This was disheartening, but our baby was out of surgery!  We had to wait a little bit longer before we were brought back to the recover area.
In the recovery area our little Tommy was wrapped up in a big warm blanket and was being cuddled by one of the nurses.  He looked so little!  He had the protective patch over his eye, which would stay on until the next morning.  This nurse mentioned that he might be a little sleepy as they had just given him morphine since he was screaming (my guess is that the poor little guy was hungry!)  We finally got to hold him- and waited for him to wake up a bit so I could feed him.  We noticed that his eye patch was coming off a little bit.  We called his nurse over (which was not the same one who was cuddling him) who basically blew us off.  Tommy ate- and I handed him over to his dad.  At this point, the patch was over his eye, but was gaping at one side so you could SEE his eye- while this was probably OK, we didn't want to have to deal with it falling off at night and us freaking out not knowing what to do.  So, we asked the nurse again- and she very reluctantly put more tape on.  But, she put it in such a strange spot, it really wasn't worth it.  We decided just to secure it at home.  We wanted to get out of there and go home!

Tommy slept all day long once we got home.  The family we had in town helped us cuddle him all day.  We kept him comfortable and he only needed a dose or two of acetaminophen.  Unfortunately, this meant he was awake ALL night long!  It is amazing how resilient children are, he really had very little residual issues related to surgery.  The next day (aside from a visit to the ophthalmologist), you never would have known he had been in surgery!

2 comments:

  1. This picture is SO sweet, I want to nibble him little by little... savoring every sweet bite!
    Thanks for documenting.
    Even if I can't relate to infant cataracts, I absolutely can relate to that need to have support. You are doing something that is so important and has the potential to help many. xoxo.

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  2. I wanted to let you know someone stole your child's photo and is using it to raise money deceptively. http://www.youcaring.com/medical-fundraiser/help-save-joseph-life/176274

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