Friday, April 15, 2011

The waiting game

We had been told that our ophthalmologist was slow during surgery- that made us happy, we certainly didn't want him rushing.  So, we knew we had a long wait.    We were notified when Tommy was asleep and the surgery began and were told that they would update us every hour (if it lasted longer than an hour).  We were able to get a bite to eat and let our friends know that he was in surgery.  We watched as other surgeons came and talked to parents right in the waiting room.  Thankfully, there did not seem to be major drama for anyone around us.   Here is a link to what the surgery looks like (not Tommy's) - I haven't been able to watch it all the way through yet.  http://www.youtube.com/watch?v=phradRutgOU

After about an hour and a half we were ushered into a consult room.  Admitedly this made me a little nervous.   They didn't make anyone else go into a room... what could it be?  Luckily, we didn't have very long to dwell on the "what ifs" because our ophthalmologist came in fairly quickly.  He sat us down and told us that the cataract surgery went well and the cataract was removed.  Unfortunately, he also told us that Tommy has PHPV (Persistent Hyperplastic Primary Vitreous).  He explained that this was a lack of development in the back of the eye and he didn't know how much of the back of the eye was involved yet.  He said that there was a wide range of severity with this condition, but couldn't tell Tommy's prognosis yet.  This was disheartening, but our baby was out of surgery!

No comments:

Post a Comment